Oh my. It seems most of our experiences and meetings with professional agencies seem to be full of time wasting, mis-information or not suitable.
If you go back over this blog, or are a regular reader and remember various encounters I have blogged about you will see what I am talking about.
Yesterday we finally had the occupational therapist visit. I blogged about this back in late July, about the problems I had when trying to rearrange the appointment sent to us.
Well finally after three years the OT comes and visits us! Two,nearly three years of 'being at the top of the list'.
The paediatrician and our specialist disability team worker had both independantly written to the OT with their recommendations for us.
I presume these letters and their content were properly read.
Why then however did the OT arrive, and as soon as she sat down did she tell me that she is confused as to why she has come out to see me, as she cannot offer me the help being requested.
Pardon?!
J has to have a physical disability, not a mental disability to start to qualify for the recommendations!
So a wasted appointment for both of us.
OT cannot offer any proper help for us as a family as in her words "you pretty much know what's what and understand the issues of safety".
So I have waited two to three years for that little gem of information.
Considering there is so much need for the OT in the community it surprised me that I was not telephoned about the content of the request, to clarify it with myself, and then saved wasting this appointment which could have been given to someone else who I am sure has also been 'at the top of the list' for several years.
Also consider that the OT only works six hours per week so appointments are few and far between.
The woman then gave me information of a charity that helps with this kind of adaptaion but upon me googling them and reading their criteria, they too only help those with physical disabilities.
Cue much huffing and puffing from me and another moaning blog!