Cuebunger. That is what J has been requesting this week. He means cucumber.
So we are up to him eating peas, carrots, a little bit of sweetcorn when it is corn on the cob and not tinned and cuebunger.
I have all the results back from the genetic tests and he has 'passed' them.
I thought that would be the end of it, but we have been asked, as most parents who have been through the same are asked, to join a genetic programme that swabs your saliva and stores it in a huge database of other children 'without diagnosis' and test it for either really really rare genetic conditions which were not tested for before or look for new ones which have yet to be found.
I have been told a diagnosis can take up to a year to come through, and even then it may be years before they find it if it is going to be a 'new' one.
I have joined SWAN - Syndromes Without A Name.
The geneticist is adament he has a genetic condition and she was really surprised he did not have SMS.
So even though J has the autistic label, it is presumed he has an undiagnosed syndrome that as with a lot of learning difficulty disorders, is similar to autism and its traits, and so it is easier to give the label so that we can then qualify for help.
